My name is Manuel “Manny” Torres and I’m a tech geek. I married my wonderful wife, Laura, on May 28, 1999. We just celebrated our 15th anniversary. I wish we could have celebrated it in better health, but we’re thankful for what we have, knowing that it could always be worse.
We have four awesome boys ages 9, 7, 3, and 1 so it’s always a challenge to find the time to write. However, I will try to write often in hopes that this blog will help at least one person out there.
I work for a really awesome tech company called “a la mode, technologies, inc.” as a systems administrator. Or as most everyone would say, I’m one of those IT guys. My job requires me to do a lot of research because we come across all kinds of problems on a daily basis that no one in the office may have ever seen before so we just have to dig deep and figure it out.
So when my wife was first diagnosed with the collapsing variant of FSGS in May of 2013 and we were told, “I’m really sorry, but there is nothing we can do. She will be on dialysis or a kidney transplant list within a year”, I started researching the subject, trying to learn as much as I could.
I really didn’t want to go on some message board or forum to read about FSGS, instead, I read research papers and clinical studies. This was NOT easy. Not coming from a medical background, it seemed like i was having to look up every other word in the dictionary. After a few days, they were getting a little easier to read and I felt like I actually knew what they were talking about (mostly). Of course, there were still times when I felt like I was reading something in a foreign language. Nonetheless, I was able to tell which articles were going to help our cause and which were not.
After reading about 150 medical journals and case studies, I found a couple (literally two) articles that I took to our nephrologist, Dr. Owens, and our battle with FSGS went from “there is nothing we can do” to “okay, we’ve got some things to try.”